The Association is creating a list of people with MND who are interested in taking part in research. Inclusion in this list is optional and does not guarantee that you will be included in future research projects.
Please note: Very few researchers will be looking for people to take part in clinical trials of potential new treatments. If you join the MND Research List, you are most likely to be invited to participate in studies that aim to improve understanding of the disease or generate evidence to help raise standards of care.
Motor Neurone Disease (MND) is a progressive neurodegenerative disease that attacks the upper and lower motor neurones.
Degeneration of the motor neurones leads to weakness and wasting of muscles, causing increasing loss of mobility in the limbs, and difficulties with speech, swallowing and breathing.
The effects of MND can vary enormously from person to person, from presenting symptoms, the rate and pattern of the disease progression to the length of survival time after diagnosis.
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